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More Than Meets the Eye: Looking Back at The Rising Phoenix: A Runway Experience

Sep 30
7 min read

On September 24, 2026, something happened that was a little difficult to describe if you only called it a fashion show.


Yes, there was a runway.


There were beautiful clothes, cameras, music, food, photos, a silent auction, and an afternoon that felt decidedly different from the ordinary.


But that was never really the point.


The Rising Phoenix: A Runway Experience — More Than Meets the Eye was created around a simple idea: what we see when we look at another person is rarely the whole story.

And for people living with autoimmune disease and other chronic health challenges, that truth can be especially profound.


Someone can look healthy and still hurt.


Someone can be accomplished and still be exhausted.


Someone can be smiling while navigating uncertainty that most of the room knows nothing about.


Someone can be a mother, an executive, an entrepreneur, a caregiver, a student, a coach, a nonprofit leader—or all those things—and still be quietly rearranging life around a body that does not always cooperate.


That is what we wanted people to see.


Or, perhaps more accurately, what we wanted people to look beyond.




The Stories Were the Runway


Eight people stepped onto our runway that afternoon: Tiffany Venekamp, Christina DiNoto, Catherine Kelly Lengers, Tessa Perkins, Rebecca Bacon, Tiffany Stafford, Josh Singh, and The Phoenix Journey founder Dominique Cousin.


They came from different backgrounds and carried different stories.


They were parents,

professionals, caregivers, entrepreneurs, students, leaders, and people navigating health challenges that are not always obvious to the people around them.

Some had spent years looking for answers.


Some had learned to protect their energy carefully.


Some had rebuilt strength after illness changed what everyday life looked like.

Some had discovered new purpose in places they never expected to find it.


And then they walked.


Not because illness was the most interesting thing about them.

Quite the opposite.


They walked because diagnosis, symptoms, limitation, or difficult chapter is only one facet of a person.


That idea had been built long before September 24 through our FACETED campaign. We intentionally showed pieces rather than pretending a single image, label, or story could capture an entire human being.


The runway brought those pieces together.


Fashion became the frame.


People were the story.


Beauty and Truth Belonged in the Same Room


Our boutique partners—Mainstream Boutique, Golden Knob Boutique, Rhone, Bowtique, and Pierce & Belle—helped us create something that mattered.


The people on the runway were not there to look like illustrations of illness.

They were there to look like themselves.

There was no requirement to look sick enough to have a story worth hearing.

No requirement to hide illness to be considered strong.

No requirement to turn difficult experiences into perfectly packaged inspirational stories.


There was simply room for more than one thing to be true at the same time.


Beauty and difficulty.

Strength and vulnerability.

Celebration and reality.


That tension is part of what made the afternoon meaningful.

Because resilience does not always look dramatic.

Sometimes it looks like going to work.

Raising children.

Caring for someone else.

Asking another question.

Making another appointment.

Changing the way you live.

Resting when you would rather keep going.

Or accepting that today's capacity is different from yesterday's without allowing that difference to define your worth.


Sometimes rising is spectacular.

Sometimes rising is incredibly ordinary.

Both count.


More Than a Fashion Show


We described The Rising Phoenix as:

More than a fashion show. A celebration of courage, beauty, and resilience.


Looking back, that still feels like the simplest description of what we were trying to create.

Guests arrived at an experience designed for connection as much as entertainment.

There were opportunities to gather, shop, take photographs, participate in the silent auction, hear personal stories, and learn more about the work of The Phoenix Journey.


Our guest speaker, Carly Olson, shared her own story with the audience. Although I was unable to hear her entire presentation myself, it was clear from the audience's response that her words resonated with many people in the room.


And that mattered.


Because this event was never meant to simply put beautiful clothing on a runway.

It was meant to create moments when people stopped and listened.

Moments when assumptions gave way to understanding.

Moments when a person in the audience might recognize something familiar in someone else's experience.


What I Saw from Behind the Scenes


I wish I could tell you that I stood at the back of the room and watched the entire afternoon unfold. I didn't.


Most of my day was spent doing what event directors often do: solving problems, answering questions, adjusting plans, and handling the inevitable things that come with creating a live event.


I did not get to watch the entire model walk.

I did not experience the day the way our guests did.


But I did get a few moments.


And one of them stayed with me.


The room erupted in applause when Dominique was introduced and when she stepped onto the runway:


And she absolutely owned it.


After everything that had gone into the event—the planning, the changes, the logistics, the unexpected problems—I finally had a moment when I could stop managing and simply watch.


This was the woman whose story helped create The Phoenix Journey walking confidently down a runway built around the idea that there is always more to a person than what we first see. For a few minutes, I was not fixing anything. I was just watching.


Then it was my turn to speak.


And before long, the afternoon was over.


As guests began leaving, I was able to speak with a few of them.

They were smiling.

They told me they had enjoyed themselves.

They seemed genuinely happy they had come.


For someone who spent most of the event behind the scenes, those conversations mattered.


Because when you are one of the people responsible for creating an experience, you often see it very differently from the people attending it.


You see the problem you had to solve.

The cue that almost went wrong.

The thing you had to adjust.

The detail that did not happen exactly the way you pictured it.


The guest sees the afternoon.


And those conversations reminded me that their experience was not my checklist.

It was how the day made them feel.


That mattered too.


And Then There Was Dominique


There was another reason Dominique's walk carried so much meaning.

The Phoenix Journey exists because her own experience with autoimmune disease eventually became bigger than her own story.


At one point, illness had left her wheelchair bound.

What followed was not some neat, straight-line transformation.

It was research, faith, support, persistence, change, and the slow rebuilding of a life that once felt out of reach.


Eventually, that journey produced the metaphor at the heart of The Phoenix Journey.

The phoenix does not pretend there was never a fire.

It rises from it.


And there is a significant difference between those two ideas.


The purpose of The Phoenix Journey has never been to tell people that difficult things are secretly wonderful or that resilience means pretending everything is fine.

It is about recognizing that what has happened to us does not have to become the entirety of who we are.


That was the message walking down the runway.












It Took a Community to Build the Experience


An event like this may last only a few hours for the guest, but behind it are months of people saying yes.

















Our sponsors included Hotze Health & Wellness Center, Spartan Roof Co., Inspire, Milk + Honey, and Divergent.


Our boutique partners brought personality and style to the runway.


Our vendors and creative partners handled food, photography, videography, transportation, security, venue operations, entertainment, hair styling, guest photography, and the many details that guests may never even think about.


And then there were the people whose names may never appear on a marquee.


Committee members.

Board members.

Volunteers.

People carrying the boxes.

Checking guests in.

Managing clothing.

Helping models.

Moving equipment.

Answering questions.

Watching details.

Changing plans.

Doing the hundred invisible things required to make something visible look effortless.


The Rising Phoenix existed because a community built it.


To every sponsor, boutique, vendor, donor, volunteer, participant, and guest who helped bring the afternoon to life:


Thank you.


So, What Did We Really See?


A few days removed from the event; I keep coming back to the title.


More Than Meets the Eye.


At first, it sounded like the theme of an autoimmune-awareness fashion show.

Now I think it was also an invitation.


Look again.


At the person whose life appears effortless.

At the woman who always seems capable.

At the man who never talks about what hurts.

At the caregiver.

At the person searching for answers.

At the person who has already found some answers and is learning to live with them.

At the friend who canceled.

At the employee who needed a little more flexibility.

At the stranger whose story you simply do not know.


Look again.


There is almost always more there.


This Was a Beginning


The Rising Phoenix was our first autoimmune-awareness runway experience.

I do not believe its legacy will simply be that we successfully put on a fashion show.

Its legacy will be what grows from it.


The lessons.

The conversations.

The relationships.


The people who understood something different after they left than they did when they arrived.


The Phoenix Journey is continuing to grow, and the lessons from this first Rising Phoenix are coming with us.


Some things will become bigger.

Some things will become better.

Some things will look completely different.


But one idea is staying exactly where it belongs:


People are always more than the fragment of their story we happen to see.


On September 24, eight people walked a runway and trusted us with a little more of theirs.

We are grateful they did.


And to everyone who came, supported, volunteered, sponsored, donated, shared, listened, and helped make the afternoon possible—


Thank you for looking beyond what meets the eye.


Catherine Darsey



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